Rett: There is Hope

Rett: There is Hope (2011)

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Description du film

Rett: Có Hope được tạo ra với một nhóm tình nguyện viên phi thường để giúp gây quỹ và nhận thức cho cộng đồng Hội chứng Rett. Câu chuyện đằng sau Hội chứng Rett rất phức tạp. Nó liên quan đến một vấn đề di truyền tàn khốc bắt đầu với các cô gái trẻ và bao gồm các động lực gia đình đáng kinh ngạc, điều trị đột phá, chăm sóc và khoa học. Bộ phim tập trung vào các gia đình Rett, sự lạc quan xung quanh các phương pháp điều trị và suy nghĩ đột phá về khoa học và Ủy thác nghiên cứu Hội chứng Rett (RSRT). Bộ phim tài liệu nhấn mạnh ba gia đình bị ảnh hưởng bởi Hội chứng Rett. Gia đình Coenraads sống ở Bờ Đông ở Trumbull, Connecticut. Con gái 14 tuổi của Chelsea được chẩn đoán mắc Rett khi cô mới ba tuổi. Chelsea đang bị ảnh hưởng nặng nề. Khi trải qua quá trình đau đớn để tìm ra một chẩn đoán thích hợp cho con gái mình, mẹ Monica đã được thúc đẩy để bắt đầu RSRT và làm Giám đốc điều hành. Gia đình Epstein sống ở Pacific Palisades, California. Hannah, con gái của họ ...

RETT: There is Hope was made with an extraordinary group of volunteers to help raise funds and awareness for the Rett Syndrome community. The story behind Rett Syndrome is complicated. It involves a devastating genetic affliction that starts with young girls and includes incredible family dynamics, groundbreaking treatment, care and science. The film focuses on Rett families, the optimism surrounding treatments and forward thinking scientific breakthroughs and the Rett Syndrome Research Trust (RSRT). The documentary highlights three families affected by Rett Syndrome. The Coenraads family lives on the East Coast in Trumbull, Connecticut. 14yr old daughter Chelsea was diagnosed with Rett when she was three. Chelsea is severely afflicted. In going through the painful process of finding a proper diagnosis for her daughter, mother Monica was driven to start RSRT and serves as it.s Executive Director. The Epstein family lives in Pacific Palisades, California. Their daughter Hannah was ...
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